Minutes: May 22, 2012

Minutes of the Board of Directors, The Special Hope Foundation

After receiving proper notice via e-mail, a quorum of the Directors named either by the Incorporator or listed in the Articles of Incorporation, constituting the Board of Directors of this Corporation, held their meeting at this time, on the day, and at the place set forth as follows:

The following Directors, constituting a quorum of the full Board, were present at the meeting:

Lynne O’Hara, President
John O’Hara, Vice-President
Tracie Sloat (not present)
Margaret Motamed, Secretary
Jackie Donaho, Treasurer
Carrie Jones
Lucy Crain, MD

Minutes Approved

The first order of business involved the review of the minutes from the previous Board Meeting on January 20, 2012. All reviewed and accepted the minutes.

Review of Existing Business

2. Read and approve of the minutes from January 20, 2012.

3. Old business

• Introduction and adoption of the Discretionary Event Fund
  • Copy of policy posted on the White Board
• Reports on 2012 Policy Health Summit, UCSF Developmental Disability Health Conference, and AADMD Annual Education Conference
  • 2012 Policy Health Summit: This was an impressive summit and program, to see how collaboration can work and does work. Just takes a lot of hard work and heart! Our own Lucy Crain was a wonderful keynote speaker.
  • The ARC has experienced some personnel changes and is redefining their relationship to the CART model. Lynne will be meeting with the Arc members to support the ongoing work. It does deeply affect our local work.
  • UCSF Developmental Disability Health Conference: Great conference. Covered a broad array of topics. The feedback has been gratifying. “I never learned this in medical school.” “I’ve been to three of these and this was the best yet!”
  • AADMD Annual Education Conference: Twice the number of participants as they’ve ever had before. 100 participants. Able to meet people from a wide range of backgrounds and make new connections that will help us going forward.
• Update on staff search:
  • We looked for an admin person, but found a Director of Programs. The budget for next year reflects that change. Plan is to contract her for 6 months. And if that is mutually acceptable then we would contract her for another 6 months at a slightly higher rate. And then we would consider a salaried position for the next fiscal year.
  • Job Description and Shannon Cully resume posted on the White Board
• Discussion on RFP
  • Kathryn Bradley – Consultant for the RFP project
  • Thanks to Lucy Crain we were able to make progress on the idea to float an RFP.
  • There are 67 UCEDs – University Centers for Excellence in Developmental Disabilities.
  • Kathryn Bradley has worked on health based grant making for many years. The Phase 1 RFP development and issuance to all 67 UCEDs is in the proposed budget. Phase 1 we would survey interest areas and topics. The would can also include criteria for the program type and size and scoring criteria. All of the data will be accessible in our Foundant system to all board members.

4. Election of Director/Officer: Lynne O’Hara

We voted unanimously to re-elect Lynne O’Hara as our Director/Officer of the Special Hope Foundation.

5. Report from the Finance Committee

• Quarterly Financial Report
• Investment Report
• Review and Approval of 2012-13 Budget
• Update on Grant Budget to date:

  The board reviewed that because the bond market is very low now so we have made a shift to stocks. As soon as the market shifts we will reinvest in bonds. No shares of the stock were sold because the price point was not reached that would cause a sale to trigger.

  Reviewed the budget. Rent is up for office space that will allow for a Programs Directors to be on staff. The ASF national conference is in San Francisco in October 2012. Local board members are encouraged to attend. Our current plan is that our consulting budget is for The Director of Programs and the RFP Phase 1 work. The board voted unanimously to approve the proposed budget for the next fiscal year.

  We reviewed our 2011-12 Grant Distribution proposal.

6. Grant Review

American Academy of Developmental Medicine and Dentistry (AADMD)

• Concerns:
  Missing areas dedicated to systems or disease, for example: epilepsy, skin care, foot care, geriatrics, etc.
  A lot of policy focus
  Nursing field has many more textbooks dedicated to this area, though the Doctors could really use a textbook in this area.
• The online webinar program and the piloting programs look awesome.
• The vision is great.
• This fits within our strategic plan in the area of Approach #2 encouraging specialists to raise awareness and spur interaction among their peers
• Recommendations:
  We would like to see a more detailed schedule plan for 2013
  We recommend that the webinars be prioritized to happen first, and then the pilots
• Decision: Fully fund, share our concerns, and recommendations

Autism Self-Advocacy Network (ASAN)

• Data set from Special Olympics
• Decision: Fully fund for $50,000

Elywn

• Service provider that runs group homes and realizes that medical professionals do not know how to interact with their clients. They are requesting funding to build a model on paper.
• Concerns: Doctors train doctors, Elywn may not be the right people to build a program and train medical professionals
• Recommendations:
  Perform a literature review
  Create a more complete proposal
  Consider instead building a training program for caregivers to take the clients to medical visits
  Decision: no funding

Oak Hill

• Concerns:
  How will the CDs be used? Target audience is healthcare providers and not the clients. The CD may be used to show an illustration, and may have a mechanism to print out illustrations. Tailored for the medical visit.
• Important and needed education for medical professionals
• Decision: Fully fund

7. New Business

• University of Delaware Leadership Institute
  For organizations supporting adults with IDD. Lynne applied and was accepted.
  Week long program with 10-15 attendees.
• Southern California collaborative group
  Startup group that may be going after similar areas as the ARC of San Francisco. Lynne will meet with some of the people over the summer in LA.
• ASF
  Oct 7-9, 2013 ASF national conference and there are specific track on how to be a good board member. Registration costs go up July 1st. Lynne will sign up all board members that are able to attend.
• 2012-2013 Meetings
  September 18, 2012, 5pm start
  January 22, 2013, 5pm start
  May 21, 2013, 5pm start

8. Adjournment