Minutes of the Board of Directors, The Special Hope Foundation
After receiving proper notice via e-mail, a quorum of the Directors named either by the Incorporator or listed in the Articles of Incorporation, constituting the Board of Directors of this Corporation, held their meeting at this time, on the day, and at the place set forth as follows:
Call to Order
The following Directors, constituting a quorum of the full Board, were present at the meeting:
- Lynne O’Hara, President
- John O’Hara, Vice-President
- Margaret Motamed, Secretary
- Carrie Jones
- Lucy Crain, MD
Minutes Approved
The first order of business involved the review of the minutes from the previous Board Meeting from Jan 22, 2013. All reviewed and accepted the minutes.
Election of Directors and Officers
We elected the following:
- Stacey Milbern: Acting Treasurer
- Laura Shumaker
We re-elected John O’Hara for another term as Vice President.
We also took a moment to express our appreciation for Jackie Donaho, who moved our accounting process to online for huge business wins. And also Jackie helped us formulate Shannon Cully’s role as our Director of programs.
We also want to thank Carrie Jones for 10 years of service to the Special Hope Board. Her background in speech pathology and innovative therapeutic ideas to help the board fully vet proposals. Also, her clarity at board meetings has been amazing.
Strategic Update
Champion the growth of local support networks to empower self-advocates
- Update on Dr. Kripke’s grant– working with self-advocacy groups and partnering with ASAN. Her presentation to American Academy of Developmental Medicine and Dentistry is at the link here
- Partnership with ASAN
- DREDF Health Care Stories– youtube link, interviews, lengthy. Please give feedback to Lynne.
Encourage specialists to raise awareness and spur action among their peers
- UCSF Conference information (Lucy Crain) Lucy shared about the conference attendee rave reviews which were very positive. The few complaints were about parking. People said that they would change some of their plans based on the conference presentations, they were strongly influenced.
- AAHD Conference Information (Carrie Jones). Carrie discussed Project Intersect,which is the project behind the AAHD conference we sponsored called “Addressing Health Disparities at the Intersection of Race, Ethnicity, and Disability. The focus is on studying how disability in combination with race and ethnicity relates to health, access to health care, and health promotion opportunities.
- AADMD Conference – April 26-28, 2013 and grant update. Predominately doctors and dentists, but now opened to Nurse Practitioners, too. The conference was slightly smaller this year. On the grant for the webinar and the textbook, several webinars were held with good response. The residency program is underway. The textbook is not here yet, but we have given them a one year extension.
Make research accessible
- ASAN update: Organ Transplant Policy Paper. Three more papers are in process with an extension.
Create sustained learning opportunities for donors
- Connection with the Golisano and Gogian Foundation Executive Directors. Either stop health screenings or instead find out how to build community to help accessibility. That is what Golisano funding is in support of. And Gogian just supplied $20,000 to the Achievable Clinic
- Jewish Funder’s Network presentation – diversity presentation
- Grant Makers in Health Annual Meeting on Health Philanthropy- Most of the funders were in conversion foundations, none with direct overlap so far.
Convene cross-sector audiences for increased communications and collaborations
- AUCD Grantee Symposium, Monday November 18, 2013 (AUCD) – the work that we funded was so successful that at the national conference the work will be presented. Our presenters will be awesome and present models that are replicable.
- Implementation grants? .We discussed that we would like to offer $5k spot implementation grants up to a set ceiling. This will be a discussion in our next meeting and will be placed as a formal agenda topic.
Report from the Finance Committee
We reviewed the following reports. The only questions were in the area of validating our Grant Making spending plan.
- Financial Report
- Investment Report
- Review and adopt 2013-14 Budget
- Update on Grant Budget to date
We approved a budget of $60,000 annual for our President, Lynne O’Hara. And we approved the budget for next fiscal year.
Grant Review
- University of Chicago – we felt that it was affordable, with a robust plan. We approved fully funding.
- Coalition for Compassionate Care of CA – if they come up with really good data we will help translate the research into a solid plan. We approved fully funding.
- Lurie Institute for Disability Policy– A question regarding residential facility staff education standards was raised. Instead they are licensed to comply with state standards that includes annual pelvic exam. Staff training costs money. So unless if it is mandated by the licensing board, it will not be used. We also discussed that the doctor’s office is where we see the noncompliance. It is a standard of care, and a standard of care violation is a reportable offense. All of the residential facilities guidelines are state specific. We decided to not fund this particular proposal –instead we want to discuss with them other ways to support their good work. We also discussed the possibility of funding in the legal advocacy space in the future.
- Arc of San Francisco –They are asking us to fund the health advocate piece. This is what happens after they have the screenings. We have concerns about the screenings, because after they screen and have abnormal findings, they need a way to treat. We decided to not yet fund.
- The Achievable Foundation – We discussed that “evidence based” is about reducing the number of emergency visits and other points. We talked about our theory of change. We are not looking to fund a parallel healthcare for people with disabilities. We do think that there is a place for a clinic of best practices and center of excellence where people can see and learn. The medical community, especially associated with healthcare students, would be powerful as a teaching model. We approved fully funding.
New Business
New RFP
We are creating a new UCEDDs RFP and our issue this time is on community based services. And the only caveat is that they use healthcare students as volunteers. We will accept applications through September 27, 2013. And AADMD will also pre-review and give us their recommendations.
Upcoming Board Meetings
- September 17, 2013
- January 21, 2014
- May 20, 2014
Adjournment
There being no further business to come before the meeting, upon motion duly made, seconded and unanimously carried, the meeting was adjourned at 6:55 p.m. PST.
________________________________________
Lynne O’Hara, President
________________________________________
Margaret Motamed, Secretary