The Special Hope Foundation is taking a look back at the history of the grants we have awarded since our beginning. Today, we’re featuring our grants from 2012. As we mentioned in Part I of our retrospective series, we have truly evolved as a foundation, and are proud of the organizations we have supported and the partnerships we have developed.
The Special Hope Foundation was created to provide financial support to organizations that promote the establishment of comprehensive health care for adults with developmental disabilities designed to address their unique and fundamental needs. We support programs that improve delivery of healthcare to adult customers with developmental disabilities and include at least one of the following:
- Improve health practitioner competency through education and/or training programs
- Address the current inadequate reimbursement system
- Advance formal care coordination including the utilization of trained support personnel/caregivers
- Increase public awareness regarding the inadequacies of developmentally disabled care to advance systemic change
- Social policy research
- Identify and overcome barriers to high-quality healthcare access
- General operating support is only considered for grantees that have previously utilized our project funding
Special Hope Foundation Grants 2012
Oak Hill, Hartford CT
Oak Hill is Connecticut’s largest private provider of services for people with disabilities, and provides a full range of services to people with disabilities of all ages. Oak Hill’s experienced staff covers the needs of every intellectual, developmental and physical disability. Oak Hill’s Relationship and Sexuality Education division used our grant to create a CD-ROM with an accompanying manual to increase health care provider competency to address reproduction and sexual health with individuals with intellectual and/or developmental disabilities. These best teaching practices and additional resources are available as print material and on Oak Hill’s website.
Autistic Self Advocacy Network (ASAN)
The Autistic Self Advocacy Network, run by and for Autistic people, works to educate communities, support self-advocacy, and improve public perceptions of autism. ASAN’s activities include public policy advocacy, the development of Autistic cultural activities, and leadership trainings for Autistic self-advocates. The non-profit provides information about autism, disability rights, and systems change to the public through a number of different educational, cultural, and advocacy related projects. The Special Hope Foundation provided a grant to ASAN to develop a policy brief series to educate the disability professional community and the public about healthcare barriers, challenges, and needs of adults and youth with intellectual and developmental disabilities. These briefs inform discussions and solution development around best practices and policies to improve service-delivery for people with intellectual and developmental disabilities to foster their well-being and quality of life.
American Academy of Developmental Medicine and Dentistry (AADMD)
The American Academy of Developmental Medicine and Dentistry (AADMD) was organized in 2002 to provide a forum for healthcare professionals who provide clinical care to people with neurodevelopmental disorders and intellectual disabilities (ND/ID). AADMD’s mission is to improve the quality of healthcare for individuals with neurodevelopmental disorders and intellectual disabilities. The Special Hope Foundation provided funding to create and promote a national “gold standard” curriculum in the care of adults with intellectual and developmental disabilities (I/DD) to primary care residency programs, implementation of the curriculum in pilot residency programs, development of a companion textbook, and hosting two webinars on their website. The webinars focus on the topics of dementia and emergency care and their impact on individuals with I/DD.
UCSF Office of Continuing Medical Education
The University of California, San Francisco Office of Continuing Medical Education offers educational opportunities for physicians, nurses, physician assistants, pharmacists, dentists, and allied health care professionals to improve their practices through a comprehensive selection of continuing education activities. The Special Hop Foundation provided a three year grant to the Office of CME at UCSF to underwrite the costs of their annual conference titled, “Developmental Disabilities: An Update for Health Professional.” This two day event provides the latest information on health issues affecting those with developmental disabilities.
Office of Developmental Primary Care (UCSF)
The Office of Developmental Primary Care (ODPC) is a program within the Department of Family and Community Medicine. The program is dedicated to improving health outcomes for people with developmental disabilities across the lifespan. The greatest area of need is for adolescents and adults. ODPC partners with other stakeholders to develop resources for clinical service, advocacy, research and training. The Special Hope Foundation provided a grant to UCSF’s Office of Developmental Primary Care to support the development of self-advocate/caregiver leadership in the area of health care access. This grassroots effort educates and engages thought leaders in order to improve health care delivery. With this grant, ODPC developed training and policy materials that reflect the priorities, preferred strategies, and values of the developmental disability community.
The Autism Research Program at Kaiser Permanente’s Division of Research conducts, publishes and disseminates high quality research to improve the health and care of individuals and families affected by autism spectrum disorders. A research grant was awarded to the Kaiser Foundation to utilize their electronic health care records to look at the prevalence of adults with autism. The data will be evaluated to investigate comorbidities, utilization of medications, and access to primary health care.